Electronic Health Records

Policy & Regulation News

Making Patient-Generated Health Data Work for Providers

An ONC-commissioned white paper identifies actions necessary for enabling providers to benefit from this patient-generated health data among other federal policy considerations.

Policy for patient-generated health data

Source: Thinkstock

- The Office of the National Coordinator for Health Information Technology (ONC) released for public comment a new draft white paper developed by Accenture Federal Services focused on the opportunities and challenges of realizing the potential of patient-generated health data.

Of particular importance to healthcare organizations and providers is a series of enabling actions the federal policy needs to consider to help clinicians make use of patient-generated health data.

Specifically, the white paper advises that a policy framework encourage patients and caregivers to work together with clinicians and researchers and determine how procuring, using, and sharing patient generated health data (PGHD) can be an asset in managing patient health.

Federal policymakers are also encouraged to support active patient participation in assessing the functionality and practicality of devices, particularly through direct feedback to device manufacturers.

  • Halamka: Stage 2 Meaningful Use, ICD-10 timelines unrealistic
  • How EHR Optimization Can Help Reduce Physician Burnout
  • ICD-10 Propels CAC Market to Reach $3.5B by 2019
  • ICSA Labs set to certify EHR for Stage 2 Meaningful Use
  • UT law professor examines Utah health data breach
  • Anesthesiologists Support Meaningful Use Hardship Exemption
  • Health IT Tools, Capabilities Required for Value-Based Care
  • One in four physicians use social media daily for sharing and research
  • How can health IT positively impact human interaction?
  • Greenway, Vitera agreement is latest health IT consolidation
  • 2014 Edition EHR certification is underway
  • FHIR Testing Expands with Cloud-based Approach
  • WEDI offers ICD-10 compliance webinar series
  • Bundled payments cut cancer costs by 34% says UnitedHealthcare
  • OSF-BCBSIL commercial ACO set to launch in Illinois in 2014
  • What is the EHR vendor’s role in a meaningful use audit?
  • EHR systems and patient stories in healthcare
  • New provider data demonstrates variation in Medicare charges
  • EHR Implementation Projects Impact EHR Optimization Efforts
  • Lack of CEHRT to force changes in 2015 Medicare program
  • Interoperability, finances, participation still plague HIEs
  • EHR analytics can identify diabetes earlier and in real time
  • OIG releases top 10 management challenges of 2012
  • Lawsuit: Adventist failed to protect PHI of 763K patients
  • Beginning an Information Governance, EHR Optimization Project
  • Hospital Roundup: Recent Health Technology Investments
  • EHR as starting point for accountable care, not just ACOs
  • CMS Releases Guide for Reporting Clinical Quality Measures
  • All ND Hospitals Will Use EHRs by 2015 as State HIE Goes Live
  • CHIME Supports for Potential EHR Meaningful Use Changes
  • Keeping ICD-10 Transition Readiness at the Forefront
  • AMA Begins Two Initiatives to Support Healthcare Innovation
  • Longstanding IT Challenges Still Limit Potential of FHIR
  • HealthShare Exchange, HIE launches in Southeastern PA
  • ONC: EHR Satisfaction, Interoperability Vital for Patient Safety
  • Cerner Provides Free CommonWell Interoperability Services
  • PA Hospital Wins HIMSS Davies Award for Patient Safety, Analytics
  • mHealth World Congress: Mobile EHR deployment lessons
  • ONC, Kaiser Permanente discuss the role of health IT in patient care
  • How Stage 2 will impact electronic health records
  • Do Health IT Certification Changes Improve Interoperability?
  • Advancing Healthcare Interoperability Beyond Meaningful Use
  • October sees all-time low in healthcare price growth
  • Meaningful use hospitals to face October payment changes
  • Eight percent of physicians receive value-based income
  • Telemedicine, remote monitoring set to hit $296.5M in 2019
  • EHR System Satisfaction Declines to 34% Among Physicians
  • Medicare 30-day readmission penalties sting hospitals
  • Is Stage 1 more challenging than Stage 2 Meaningful Use?
  • 90% of WI patients may receive accountable care with new pact
  • Meaningful Use Fails to Advance Pediatric EHR Adoption
  • Medicare payments set to take a tumble over the “fiscal cliff”
  • CMS and ONC Seeks Feedback on Quality Measures Reporting
  • More Industry Groups Voice Opinions on Proposed MACRA Rules
  • Are eligible hospitals ready for Stage 2 Meaningful Use?
  • Subtle EHR alert increases pediatric flu vaccine by 9%
  • Congressional Hearing to Assess DoD-VA EHR Interoperability
  • SHIN-NY HIE Successfully Implements Patient Record Lookup
  • Arizona Eliminates State HIE Fees for Community Members
  • CMS quality improvement program raises concerns for AHA, FAH
  • Six accountable care strategies to reduce 30-day readmissions
  • DE Health Information Exchange Improves EHR Patient Access
  • Moving ACOs to PCMHs through health IT
  • AHIMA 2013: How Sutter Health educates physicians for ICD-10
  • Telemedicine provides accurate vision screenings for premies
  • New EHR legislation could boost specialist participation in Meaningful Use
  • Seema Verma Confirmed to Serve as New CMS Administrator
  • Top 10 Ambulatory EHR Vendors by Physician Practice EHR Implementations
  • ICD-10 prep still plagued by manpower, data integrity issues
  • Q&A: Preparing for ICD-10, competing HIT initiatives
  • Short list of clearinghouses ready for ICD-10 gets longer
  • Maine HIE puts focus on population health
  • CORHIO adds more providers to its HIE
  • Epic Systems Squeaks to Top of Physician EHR Adoption List
  • Senate will vote on ICD-10 delay, SGR fix on Monday
  • Physician series: Why choosing the right EMR vendor matters
  • Professional Groups Comment on CMS Value-Based Pay Models
  • ONC Proposed Rule Calls for New Certified EHR Technology Process
  • Study shows EHR use doesn’t equal better care
  • VA recognizes 10 years of My HealtheVet use, success
  • CMS Releases Batch Options for Meaningful Use Reporting
  • EHRs, patient portals increase well-child checks, vaccines
  • Virtualization, speech recognition to grow aggressively
  • Is Public Perception Negatively Impacting Epic Systems?
  • AHRQ to study health IT, EHR impact on ambulatory care workflows
  • Oregon CCOs cut ED visits by 13%, double EHR adoption rates
  • What is the role of social media in electronic health records?
  • Laws increase telemedicine coverage in Kentucky, Missouri
  • Social Security Joins CommonWell’s Push for Interoperability
  • Why Patients, Providers Support Health Information Exchange
  • 75% of Practices with NPs, PAs Have Adopted EHRs
  • Michigan Launches Anesthesiology Patient Safety Program
  • Summer of the Health Data Breach continues
  • Medicare, meaningful use sequestration cuts start April 1
  • OK Health Information Exchange Readies Plans to Shut Down
  • ONC Appoints Cook County CMIO as Next Chief Medical Officer
  • Boulder Community back online after lengthy EHR outage
  • Anthem BCBS, Franciscan Alliance to launch ACO in April
  • Tablets triumph at HIMSS13, heralding the mHealth revolution
  • Potential health data breach at Boston Children’s Hospital
  • While PGHD can be largely beneficial to optimizing patient care, certain challenges may accompany the use and exchange of PGHD, the authors observe. Potential obstacles include the impact on clinical workflows, the management of patient expectations, the potential for increased liability, and the limited body of evidence for the clinical value of PGHD.

    Most clinical workflows do not presently support PGHD, so clinicians are primarily left to use data collected during a patient visit.

    One of the most significant advantages of PGHD is the ability to record data before and after patient visits to fill out an even fuller portrait of a patient’s medical history.

    However, this large cache of data could overwhelm providers and affect their workflows. Incorporating PGHD into clinical care necessitates upfront investments and sufficient technical infrastructure to avoid leading to inaccurate or duplicate records could appear in a patient’s medical history, among other potential issues. According to the authors, a lack of guidance and best practices on how to accept, review, and integrate this data has led clinicians thus to view PGHD with skepticism.

    To ameliorate these potential problems, the white paper has suggested a handful of enabling actions.

    First, the policy framework should support the use of prioritized PGHD use cases in clinician’s workflows. The framework should ideally help clinicians identify use cases and PGHD data types that are most relevant, useful, and valuable to improving patient care and then encourage providers to develop standard practices for the use of PGHD. Incorporating PGHD into their workflows and using tools to analyze the data will further foster confidence among providers regarding the benefits of well-utilized PGHD.

    According to the authors, the future framework should also encourage collaboration between clinicians and developers to advance technologies promoting efficient PGHD use. By recommending clinicians request technologies that optimize PGHD functionalities and allow efficient PGHD analysis, more developers of core clinical systems will prioritize and innovate these kinds of technologies.

    Likewise, the authors call for a framework that identifies benefits, challenges, and best practices of PGHD use to highlight its clinical value and business case.

    Lastly, the framework should promote the use of PGHD in supporting patient data donation for research purposes. The wealth of data made available by PGHD could be instrumental in a variety of studies, so clinicians should consider raising awareness about the potential benefits of donating data.

    With these considerations in mind, future policy is expected to optimize PGHD and ease present concerns about the practicality of this kind of information.

    “Technology — from consumer apps to medical-grade devices — has enabled patients to capture health data on their own,” said Jim Traficant, AFS Managing Director, Federal Health. “This draft white paper will help lay the groundwork for ONC to develop a policy framework for effectively and safely capturing, using and sharing PGHD to improve healthcare and research.”

    The draft white paper also addresses a wide breadth of additional topics including opportunities, challenges, and enabling actions for policymakers, technology stakeholders, payers, and employers. 



    Sign up to continue reading and gain Free Access to all our resources.

    Sign up for our free newsletter and join 60,000 of
    your peers to stay up to date with tips and advice on:

    EHR Optimization
    EHR Interoperability
    EHR Replacement

    White Papers, Webcasts, Featured Articles and Exclusive Interviews

    Our privacy policy

    no, thanks