Medical Research

How mCODE is Driving EHR Interoperability for Cancer Research

January 17, 2024 - Historically, restricted EHR interoperability has hindered the cancer research community's ability to harness big data. With siloed data across the healthcare continuum, cancer research has centered on clinical trials. However, these studies only include 6.3 percent of cancer patients nationwide, leaving vast amounts of treatment data unstudied across health systems. "We're...


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How Regenstrief Is Linking Dental & EHR Data to Drive Clinical Research

by Hannah Nelson

Dental records and EHR data remain siloed across the care continuum, presenting challenges for clinical research and patient-centered care. This is despite evidence that oral health and overall health go hand-in-hand, experts have...

How Case Western is Prioritizing Epic EHR Training for Medical Students

by Hannah Nelson

EHR use has become closely intertwined with the practice of medicine, with a staggering 96 percent of hospitals leveraging the technology. However, hands-on EHR training remains rare in early medical student education. While some medical...

PCORI Unveils Comparative Clinical Effectiveness Research Funding Opportunities

by Hannah Nelson

The Patient-Centered Outcomes Research Institute (PCORI) has announced four new funding opportunities for comparative clinical effectiveness research (CER) studies. "With these latest funding...

NC Health Information Exchange Authority Launches Stroke Data Registry

by Sarai Rodriguez

The North Carolina Health Information Exchange Authority and the Department of Health and Human Services have kicked off the state's first-ever Stroke Data Registry platform, offering a clearer...

Partnership Enables Open Data Sharing for Spinal Cord Injury Research

by Sarai Rodriguez

Backed by a $250,000 grant, the University of Alberta and the Reeve Foundation have launched a joint three-year project to facilitate open data sharing through the Open Data Commons for Spinal Cord...

PCORI Launches Comparative Clinical Effectiveness Research Initiative

by Hannah Nelson

The Patient-Centered Outcomes Research Institute (PCORI) has kicked off a multiyear comparative clinical effectiveness research initiative with an initial investment of $50 million. The Health Systems...

Research System Integration Concerns Could Impact VA Oracle Cerner EHR Rollout

by Hannah Nelson

There may be additional delays in the Department of Veterans Affairs (VA) Oracle Cerner EHR rollout due to concerns over how the health IT interacts with medical research systems, according to...

Regenstrief Institute Appoints New CEO to Drive Health Equity Research

by Hannah Nelson

Indiana University School of Medicine has appointed a nationally-recognized expert in epidemiology and health equity research to serve as the new president and chief executive officer of the...

Regenstrief Foundation, Walther Gifts Create IU Cancer Informatics Chair

by Hannah Nelson

Gifts totaling $3 million from the Regenstrief Foundation Inc. and the Walther Cancer Foundation Inc. will create an endowed chair in cancer informatics at the Indiana University Melvin and Bren Simon...

Electronic Informed Consenting Improves Data for Clinical Research

by Hannah Nelson

Electronic informed consenting (eIC) for clinical research via EHR patient portals could help improve the completeness of required fields compared to paper-based consenting surveys, according to a...

Nonprofit Integrates EHR Data into Duchenne Registry for Clinical Research

by Hannah Nelson

Parent Project Muscular Dystrophy (PPMD), a nonprofit organization working to end Duchenne muscular dystrophy (Duchenne), has launched a study that will combine patient reported outcomes data with EHR...

PPRL Boosts Patient Matching Across Clinical Research Networks

by Hannah Nelson

Privacy-preserving record linkage (PPRL) technology helped enhance patient matching within the National Patient-Centered Clinical Research Network (PCORnet), according to a study published in...

EHR Vendor Epic Releases Program for Clinical Trial Access, Matchmaking

by Hannah Nelson

EHR vendor Epic has announced the release of its Life Sciences program which aims to help providers, pharmaceutical companies, and medical device manufacturers recruit research participants and expand...

Yale Rheumatology Joins Qualified Clinical Data Registry

by Sarai Rodriguez

The Section of Rheumatology, Allergy & Immunology at Yale School of Medicine announced it would join the Rheumatology Informatics System for Effectiveness (RISE), a qualified...

ONC Mulls Health Information Exchange Data for Patient-Centered Research

by Sarai Rodriguez

ONC has announced a new project to leverage health information exchange (HIE) data to support COVID-19 focused patient-centered outcomes research (PCOR) by implementing new data standards and...

All of Us Research Program Issues RFI for EHR Data Collection from HIEs

by Hannah Nelson

The National Institutes of Health’s All of Us Research Program has issued a Request for Information (RFI) to seek guidance on how best to integrate EHR data from health information networks...

PCORI Gives $8M to Grow Patient Data Sharing Network for Research

by Sarai Rodriguez

The Patient-Centered Outcomes Research Institute (PCORI) has granted nearly $8 million in renewed funding to expand a patient dating sharing network in New York set to enable greater healthcare...

Guidance Needed on Information Blocking Rule Research Implications

by Hannah Nelson

Federal guidance is needed on information blocking rule implementation for research data sharing, according to a Health Affairs article. While electronic health information (EHI) holds the potential...

How EHR Data, Survey Responses Can Mitigate Clinical Research Bias

by Hannah Nelson

Disagreement between EHR data and survey responses can help identify possible missing health records and mitigate potential clinical research biases, according to a study published in JAMIA. The All...